Parents and caregivers of adults who have Down syndrome discuss current issues: job placement, storytelling as advocacy, research for real life, and planning with siblings. Join members of The Road We’ve Shared as they lead a parent-to-parent discussion on these topics. Bring your questions, and share your thoughts with us.
In 1987 I met my best friend. My son Josh changed my life in ways I would never have imagined. The one thing I’ve learned over the years is that we all do the best we can with what we know. It’s our responsibility to continue to learn, grow, and broaden the experience of others when we can. I’m a single mom with an M.A. in Critical Disability Studies from York University in Toronto. Right now, my “job” is being Josh’s assistant, (when he lets me) and it’s my favorite job ever! I also started The Road We’ve Shared, an online community by and for parents and caregivers of adults who have Down syndrome.
Mardra Sikora is an author, speaker, & advocate who believes in the power of words and uses both fiction and non-fiction to advocate for and with her adult son, Marcus. Author of “Essay: Arguing Eugenics,” and The Future and Other Twists: A collection of short and super-short stories. Her work is also included in a variety of anthologies and national websites including The Huffington Post.
Marianne Marts is a sister and 15 year co-guardian to her oldest brother, Joey who has Down Syndrome. She recently authored a children book called Will YOU Be My Friend? with a soon to be second called YOU are My Hero! A book series teaching children we are more alike than different with her brother as the main character. Marianne currently works at AZ Bridge to Independent Living as a statewide trainer on Disability Benefits.